Well, we eventually got a room on a regular floor late last night (sigh of relief!) and we had a "regular" night's sleep in preparation for today. They blocked off her trach at 11:30 (3 hours ago) and her sat levels have been in the upper 90s. She's beginning to fall asleep right now, so now the real test begins, as, apparently it's during sleep that it's the most critical and most likely to not do okay. Just in last few minutes the sats have gone down a bit, but not too alarming.
I'm VeeGee's Mommy, K's wife, an academic, a writer, a teacher, a gardener, a chef, blah blah blah. I write about my journey as an adoptive mom of a kiddo with Pierre Robin Sequence, and other stuff like politics, race, religion - you know, that stuff we're not supposed to talk about!